We keep you up-to-date about the happenings on the field of PH and rare diseases and provide you with healthcare-related news in the European Union and beyond.
Report from the IRC Summit in Lisbon June 26th – June 27th
The International Respiratory Coalition (IRC) is an organization established in 2021 amidst the pandemic. Launched by a diverse group of partners, the IRC represents a broad spectrum that includes the professional respiratory community, patients, and industry players.
Report from EURORDIS membership meeting in Stockholm May 25th – May 27th
EURORDIS invited to a membership meeting in Stockholm and promised an event that «will provide an engaging and lively discussion on the road towards a holistic approach to addressing the needs of people living with a rare disease and ensuring their full inclusion in society».
EU Commission meeting
The EU Commission invite stakeholders to a meeting to discussed the revision of the pharmaceutical legislation. The general director of SG SANTE lead the meeting.
EPF’s 20 years anniversary + AGM
European Patients’ Forum turned 20 years in 2023. This was marked with an event in Brussels where members, industry and others were invited. (PHA Europe is a full member.) The next day they ran their Annual General Meeting.
Report from the 4th Baltic PH Conference
I recently attended the 4th Baltic PH conference held in Riga, Latvia. The conference is held every second year, and they alternate the location for the conferences between Latvia, Lithuania and Estonia.
Drug Induced PH Symposium
It’s a pleasure to announce the multidisciplinary, think-tank style symposium at Stanford University on April 13th & 14th 2023 on the topic of Drug Induced Pulmonary Hypertension. The symposium will be hybrid (in-person and live streaming) and is CME accredited.
New ESC/ERS guidelines on pulmonary hypertension
The long awaited new ESC/ERS guidelines on the diagnosis and treatment of pulmonary hypertension was presented during the annual ESC (European Society of Cardiologists) Congress in Barcelona from the 26th of August to 29th of August.
Virtual school on rare lung disease
ERS in collaboration with ERN-LUNG. When: 21-06-2022 - 08:20 - 22-06-2022 - 18:00. Organizer: ERS/ERN-LUNG.
10th Edition of the International Workshop on Lung Health
The workshop will be held in Nice from January 19th to January 21st, 2023.