Coronavirus disease (COVID-19) is an infectious disease caused by a newly discovered coronavirus.

General information

On 30 January 2020, The World Health Organization (WHO) declared the outbreak a public health emergency of international concern. On 11 March 2020, WHO characterised COVID-19 as a pandemic.

PHCARE patient questionnaire

In order to better understand the COVID pandemic effects on the care of PH patients and to help prepare for future challenges, a patient-centric survey has been started in the last days of May. The survey is the result of the collaboration of all of the stakeholders: thanks to the effort of the fellow patients […]

Mini COVID-19 patient survey

We ran an anonymized COVID survey amongst the patient leaders of our members to map the effect of the COVID pandemic so far. We received 24 responses from our 33 member associations, which might reflect unbiased data.