Collaborative Educational Programs

In partnership with our valued sponsors we provide educational materials, useful resources and various tools. These programs provides up-to-date information, and serve as a tool during local negotiations and campaigns.

Infographics

Our “Get the facts” infographic provides basic information about PH, non-specific symptoms, which might lead to misdiagnosis and possible treatment options (including CTEPH). The infographic also provides interesting data.

PH Human

[vc_row fullwidth="0" row_space="remove_padding"][vc_column][gva_block_heading title="PH Human" align="align-left"][/gva_block_heading][vc_column_text] You can also find inspirational stories shared by people who live with PH. Visit the Careers and Hobbies section to read about their achievements in the working world but also across their interests and hobbies and access free motivational flyers which capture their stories. The third section of this website hosts episodes from the PH Self-Management Webinar Series. The series comprises educational and discursive webinars held on a variety of topics related to PH, with the aim of sharing best practice examples and inspiring open dialogue between multidisciplinary team members and their patients. Visit the website to listen to the episode podcasts or to read the summary reports, which capture key insights from each episode. You can learn more at here.[/vc_column_text][/vc_column][/vc_row]

PH: It’s personal

Introduction On this page you will find various materials to help you understand more about your diagnosis, and how you can work with your healthcare team to achieve your personal goals. You may also find the materials here useful if you are caring for a loved one who is suffering from PH.

Time to Talk

The impact of pulmonary arterial hypertension (PAH) on the lives of patients and carers: results from an international survey PHA Europe is pleased to share with you the results of a large scale PAH Patient and Carer Survey, carried out at the end of 2011 across five European countries. The survey was undertaken to provide […]

Opening lines educational project

The first in a series of multidisciplinary steering committee meetings was held in London, UK on 11 February 2013 to discuss the development of a patient-focused programme for pulmonary arterial hypertension (PAH), with the goal of gaining a better understanding of the patient’s perspective of this disease, and improved patient care.

Our PH Library

What is Our PH Library? Our PH Library is a website that has been developed by PHA EUROPE and the PHA US, with an educational grant from Actelion Pharmaceuticals Ltd and in collaboration with a web development firm. The website provides information and a library of more than 200 high quality resources developed by patient […]