We keep you up-to-date about the happenings on the field of PH and rare diseases and provide you with healthcare-related news in the European Union and beyond.
Report ESOT congress 2023
Alliance Networks Patient Inclusive Activities at ESOT Congress 2023 in Athens.
Report from the ESC 2023 Congress
The European Society of Cardiology (ESC) convened its annual congress in Amsterdam from August 25th to 28th. A staggering 30,000 global participants, bolstered by 4,500 faculty members and presenters, attended this monumental event themed "Joining Forces to Protect the Heart".
Social Media Article
PHA Europe is incredibly proud of our community of patients, friends, family, and all types of supporters. Needless to say, it was particularly important for us to shine more light on their achievements and experiences through our social media platforms.
PHA Europe Represented at ELF’s Digital PAG
PHA Europe maintains a close working relationship with both the European Respiratory Society (ERS) and the European Lung Foundation (ELF).
Report from the IMPACHT conference in Barcelona June 30th – July 1st
Ferrer annually hosts a conference known as IMPACHT (International Meeting on Pulmonary Hypertension Clinical Treatment) that caters to pulmonologists and cardiologists.
Report from the IRC Summit in Lisbon June 26th – June 27th
The International Respiratory Coalition (IRC) is an organization established in 2021 amidst the pandemic. Launched by a diverse group of partners, the IRC represents a broad spectrum that includes the professional respiratory community, patients, and industry players.
Report from EURORDIS membership meeting in Stockholm May 25th – May 27th
EURORDIS invited to a membership meeting in Stockholm and promised an event that «will provide an engaging and lively discussion on the road towards a holistic approach to addressing the needs of people living with a rare disease and ensuring their full inclusion in society».
EU Commission meeting
The EU Commission invite stakeholders to a meeting to discussed the revision of the pharmaceutical legislation. The general director of SG SANTE lead the meeting.
EPF’s 20 years anniversary + AGM
European Patients’ Forum turned 20 years in 2023. This was marked with an event in Brussels where members, industry and others were invited. (PHA Europe is a full member.) The next day they ran their Annual General Meeting.