News

We keep you up-to-date about the happenings on the field of PH and rare diseases and provide you with healthcare-related news in the European Union and beyond.

15th-Year Anniversary of FCHP

15th-Year Anniversary of FCHP

The Spanish association FCHP celebrated its 15th anniversary in Madrid on December 1st. Approximately 200 guests were invited, representing a diverse group that included patients, carers, health authorities, PH researchers, PH specialists, social workers, psychologists, representatives from PHA Europe and PHA, TV celebrities, and pop musicians, to name a few.
The European Health Data Space

The European Health Data Space

Pulmonary Hypertension Association Europe, as part of a large multi-stakeholder group, representing the entire spectrum of the healthcare ecosystem and consisting of 33 European patient organisations, medical associations, health research infrastructures and health industry associations, have issued a joint statement to alarm bells about the significant legislative shortcomings and uncertainties in the proposed Regulation for a European Health Data Space (EHDS).
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