We keep you up-to-date about the happenings on the field of PH and rare diseases and provide you with healthcare-related news in the European Union and beyond.
Mariposa Journal – 2020 winter N.25
Dear Friends, I am delighted to present the Winter 2020 edition of Mariposa. No one would have thought at the beginning of the year how special and challenging the coming days would be. On the 10th of March, the World Health Organization declared the COVID-19 outbreak a pandemic.ERS Statement on CTEPH is published!
The ERS Statement on Chronic Thromboembolic Pulmonary Hypertension (CTEPH) has now been published online in the European Respiratory Journal (ERJ) as an early view.COVID-19 PH reference center survey published
Two COVID questionnaires were launched earlier this year. One of the surveys was disseminated within the expert centres and provided useful insight of the effects of COVID-19 on PH patients.Virtual ERS Congress – free COVID-19 live programme
The first ever virtual ERS International Congress will take place on 7–9 September and a day’s worth of free online sessions dedicated to SARS-CoV-2 and COVID-19 will be organized in addition to the Congress programme.Coronavirus disease 2019 (COVID 19)
Coronavirus disease (COVID-19) is an infectious disease caused by a newly discovered coronavirus.Presidential greeting
Dear friends, My name is Danijela Pešić and I am the current president of PHA Europe. As many of you know, the organization has existed since 2003 and gathers around itself almost all European countries. Our goal is to help all patients, their caregivers, and together with the profession and decision-makers, to enable a […]ECRD goes online
ECRD (European Conference for Rare Diseases) is the largest multi-stakeholder gathering in Europe for the rare disease community.EPF holds its annual general meeting via videoconference
European Patient Forum will hold its annual general meeting via videoconference on 24th of April due to COVID.European IPF Patient Summit is cancelled
PHA Europe was invited as guest speaker but the event originally scheduled for 24-26th of April in Warsaw was cancelled due to COVID. Learn more at: https://euipfsummit.org/