We keep you up-to-date about the happenings on the field of PH and rare diseases and provide you with healthcare-related news in the European Union and beyond.
Report from the PVRI congress in London – 2023
The Pulmonary Vascular Research Institute (PVRI) recently concluded its annual congress in London, England. Founded in 2006 as a charitable organization, PVRI has evolved into a global network that unites leading medical professionals worldwide with a keen interest in pulmonary hypertension and pulmonary vascular disease (PVD).
15th-Year Anniversary of FCHP
The Spanish association FCHP celebrated its 15th anniversary in Madrid on December 1st. Approximately 200 guests were invited, representing a diverse group that included patients, carers, health authorities, PH researchers, PH specialists, social workers, psychologists, representatives from PHA Europe and PHA, TV celebrities, and pop musicians, to name a few.
The European Health Data Space
Pulmonary Hypertension Association Europe, as part of a large multi-stakeholder group, representing the entire spectrum of the healthcare ecosystem and consisting of 33 European patient organisations, medical associations, health research infrastructures and health industry associations, have issued a joint statement to alarm bells about the significant legislative shortcomings and uncertainties in the proposed Regulation for a European Health Data Space (EHDS).
November is Awareness Month 2023
PHA Europe is collaborating with PHA to raise awareness for Pulmonary Hypertension (PH) during the Awareness Month of November. Tailorable templates have been created for sharing on social media.
Report ESOT congress 2023
Alliance Networks Patient Inclusive Activities at ESOT Congress 2023 in Athens.
Report from the ESC 2023 Congress
The European Society of Cardiology (ESC) convened its annual congress in Amsterdam from August 25th to 28th. A staggering 30,000 global participants, bolstered by 4,500 faculty members and presenters, attended this monumental event themed "Joining Forces to Protect the Heart".
Social Media Article
PHA Europe is incredibly proud of our community of patients, friends, family, and all types of supporters. Needless to say, it was particularly important for us to shine more light on their achievements and experiences through our social media platforms.
PHA Europe Represented at ELF’s Digital PAG
PHA Europe maintains a close working relationship with both the European Respiratory Society (ERS) and the European Lung Foundation (ELF).
Report from the IMPACHT conference in Barcelona June 30th – July 1st
Ferrer annually hosts a conference known as IMPACHT (International Meeting on Pulmonary Hypertension Clinical Treatment) that caters to pulmonologists and cardiologists.