Oksana, PHURDA Ukraine

I am first and foremost a mother. However, I am also a PH patient and I try to improve the situation for patients like myself in Ukraine.

My first experience with PH comes from my childhood. I could not run, jump or dance. Childhood is special as our emotions and feelings stay with us for life. I am now the leader of PHURDA and the charitable foundation «Sister Dalila». We try to give patients hope and faith in life. In this way, we try to improve their situation and this is true for patients any ages including children.

Thanks to the activities of the association, the voice of PH patients in Ukraine is stronger. The patients’ lives are now filled with hope through our support and attention.