PHA Europe and its members are sharing the common vision of making the quality of life of the patients living with pulmonary hypertension better and ultimately finding a cure for this disease. Our core values unfolded in the image brochure help us in delivering initiatives and projects to reach our aims summarized in the “Call to Action” position paper, which identifies the main unmet needs of persons living with pulmonary hypertension and recommends effective ways to address those needs. The Call to action has been officially endorsed by the European Respiratory Society and was presented in the European Parliament in 2012 in the course of a public event hosted by MEPS Hannes Swoboda and Karen Kadenbach. See also section on Call to Action.
These are the five main areas for action:
- improve access to expert care
- improve awareness and screening
- encourage clinical research and innovation
- empower patient groups
- ensure the availability of psychosocial support