Privacy Statement

The European Pulmonary Hypertension Association (PHA Europe)is committed to protecting yourpersonal data irrespective of whether you provideus with them online or in a written form. From this privacy statement (Privacy Statement) you can learn how your personal data are handled, managed and processed by PHA Europeas well as what type of rights you have as data subject under the terms of the European General Data Protection Regulation(GDPR).

The Privacy Statement coversall pages, which are or will behosted, maintainedby PHA Europe, unless special privacy statement applies to a given webpage, whichwill beclearly shownand shall supplement this Privacy Statement.

PHA Europeuses the information it collects about you to

  • better understand how its communication strategy, websites, Youtube, Facebook and other social media channelare used,
  • send information and updates, you have requested or that may be considered of interest to you,on pulmonary hypertension and other rare diseases,ú
  • provide updates, training opportunities and other news about PHA Europe, its affiliates, other partners, scientific communities, pharmaceutical partners, EU institutions and other associations PHA Europeis member ofor has connection to,
  • process your membership application and to render services you have ordered or which are included in your membership, or to assess the work done by PHA Europe.

To understand how your personal information will be treated, please read the followingPrivacy Statement. This Privacy Statementmay change from time to time so please refer to it periodically. In addition, we will where applicable send you a notice of any such change.

WHAT IDENTIFIABLE INFORMATION IS PROCESSED ABOUT YOU?

The type and amount of information processedby PHA Europedepends on how you use the resources and services PHA Europeis providing. You can access most PHA Europepages without stating who you are and without revealing any personal information, however to have access to internal mailing list data considered personal information may be collected from you.

PHA Europedoes not collect information identifying you personally (such as your name, address, phone number or e-mail address) unless that information is voluntarily disclosed.Kindly note however that you might be requested to provide personal information to comply with applicable laws or in order to receive any of the services PHA Europe is rendering. Once you do not provide information upon request, PHA Europe might refuse to provide the given service or provide it only with some limitation.

There are other instances where PHA Europerequests information that does identify you personally for the purpose of providing you with specific services or of corresponding with you. Information that you supply in this way will not be shared with any third party except where needed to provide a requested service or required by law.

If you register for a newsletter, log on to certain PHA Europewebsites, order a publication, request information, provide feedback, attend an online course, join a discussion group or join an electronic mailing list or newsletter, or request the assistance of PHA Europe to attend a face to face meeting, general assembly or any other meeting where the arrangement of your travel is needed, you may be asked to provide personal information such as your

  • name
  • nationality
  • place and date of birth
  • mother’s name
  • identification number or photocopy of your ID card
  • bank account number
  • postal address
  • e-mail address.

This information is collected only with your knowledge and permission and is kept in various PHA Europedatabases and mailing lists. If you are purchasing something or donating using aPHA Europewebsite, you may be asked to provide your credit card details. These details are transferred to a secure, third party online payment serviceprovider,and PHA Europe will nor have access, neither willretain, manage, store, host or processsuch information.

HOW YOUR INFORMATION IS USED BY PHA EUROPE?

PHA Europedoes not distribute, sell, make available or grant access to the user information to third parties, unless it is requiredby applicable law, or neededto improve PHA EUROPE’sunderstanding of web visitors, to send information that you have requested or that may be considered of interest to you and to render services you have asked for.

WITH WHOM MAY PHA EUROPE SHARE THE INFORMATION?

PHA Europewill not disclose any information identifying you personally, except with your prior explicit permission, to service providers to render the service you requestedor where required by applicable law.

RIGHTS YOU HAVE RELATED TO THE DATA PROCESSING OF PHA EUROPE

At any time, you can amendor even ask the erase ofyour information by contacting us at info@phaeurope.org. You can also at any time check the data handled by PHA Europe by contacting us.

WHAT CHOICES ARE AVAILABLE TO YOU REGARDING COLLECTION, USE AND DISTRIBUTION OF THE INFORMATION?

Any information on new PHA Europeactivities that you registered to receive will be sent to you electronically or by other means. PHA Europemay also send you e-mail messages and newsletters which you consented to and are of interest to you. You can indicate that you do not wish to receive such e-mail messages or newsletters by using the unsubscribe link in the newsletters or emailing us at info@phaeurope.org and you will be removed from the recipients’ list.

HOW DOES PHA EUROPE PROTECT YOUR PERSONAL INFORMATION?

PHA Europeendeavors to ensure high level of protection of your personal informationyou provide with us. However, it cannot guarantee that submitting information over the Internet is completely secure and data are not compromised. As a result, PHA Europedoes not confirm or warrant the security of personal information submitted;you do so at your own risk.Please also note that PHA Europemay store your information in private clouds and the(secure)copy thereofmight be outside the European Union.

COOKIE POLICY

PHA Europewebsites use cookies in order to provide you with a more personalized web experience. A cookie is a text-only string of information that is created and stored on your computer by your browser. It contains information about your visit that your browser uses to personalize certain pages or elements. For statistical analysis purposes, a cookie may also be used to pass a randomly generated and anonymous unique number to our servers. Cookies cannot be used by themselves to identify you. A cookie will typically contain the name of the domain from which the cookie has come, as well as the lifetime and expiration of the cookie, and a value, usually a text value or a randomly generated unique number.

If you do not wish to receive cookies, you can easily modify your browser to reject all cookies or to notify you whenever one is about to be placed on your computer. However, if cookies are not accepted you may not be able to experience all the interactive features of the PHA Europewebsites. You are therefore encouragedto allow cookies in order to fully enjoy the PHA Europewebsites features.

Most web servers, including PHA EUROPEones, use log files, which record information such as service provider IP addresses, browser brand and version, referring websites, search terms used, average number of requested pages, average visit duration, total visitor traffic and information gathered for aggregate use.This information can in no way be used to track or identify any individual usersor to conduct analytical data processing.PHA Europe will use such data for debuggingpurposes.

DISCLAIMER

PHA Europewebsites contain hypertext links to other sites. PHA Europeis not responsible for any third-party content or privacy practices accessible through this website. We do not endorse any of the companies or opinions listed in or linked to or from the website. We also do not accept or host any advertising.

v1 2018/09/23

Privacy Statement – PHA Europe GDPR v1 2018/09/23