1. Purpose & Scope
This Code of Ethics guides all individuals acting in PHA Europe & Global’s name—board members, staff, consultants, volunteers, and national member representatives—to foster integrity, trust, openness, and ethical behaviour.
2. Core Principles
1. Integrity & Impartiality
- Always act in the best interests of PHA Europe & Global, upholding transparency, objectivity, and accountability.
- Avoid conflicts between personal gain and organisational priorities; declare any potential conflicts immediately.
2. Respect & Empathy
- Treat patients, carers, members, colleagues, and partners with dignity and compassion, especially acknowledging the challenges PH patients face.
3. Equity & Inclusion
- Offer equal opportunities to all stakeholders—patients, national associations, healthcare professionals, and industry partners—across Europe.
4. Independence & Transparency in Partnerships
- Maintain impartial relationships with industry. Avoid exclusive partnerships and ensure educational content remains balanced and independent.
5. Truth & Clarity in Communication
- Provide accurate, objective, relevant, timely, and understandable information to all audiences.
6. Confidentiality & Privacy
- Respect privacy laws and safeguard confidential information, unless legally required to disclose.
7. Compliance & Lawfulness
- Abide by all relevant laws, regulations, and internal policies.
8. Financial Integrity
- Practice fiscal responsibility; prevent fraud, bribery, misuse of assets, and improper influence.
9. Professionalism & Accountability
- Act with professional conduct, taking responsibility for personal actions and acknowledging mistakes when they occur.
10. Promotion of Patient Empowerment
- Commit to PHA Europe & Global’s mission: psychosocial support, access to treatment, health literacy, shared decision-making, capacity building, early diagnosis, improved care standards, and patient empowerment.
3. Ethical Responsibilities
To Patients & Members: Treat every patient and member with empathy, empower them with knowledge, and protect their rights.
To Partners & Sponsors: Ensure fairness, transparency, and equal opportunity in collaborations.
To the Public: Build public trust through ethical advocacy, unbiased awareness campaigns, and honest representation of PH challenges.
To Each Other: Support open communication, mutual respect, and ethical accountability among all PHA Europe & Global participants.
4. Implementation & Enforcement
Training & Awareness: Regular ethics and compliance training for staff, volunteers, and board members.
Reporting Mechanisms: Establish a confidential hotline or email for reporting unethical behaviour, fraud, or conflicts of interest.
Monitoring & Audit: Conduct periodic internal reviews or audits to ensure adherence to ethical standards.
Consequences: Breaches of this code may result in corrective actions, including removal from roles, financial restitution, or legal referral.
5. Review & Update
This Code will be reviewed at least every two years—or sooner if organisational or regulatory changes occur—to keep it relevant and effective.