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  • Home
  • About Us
    • Our History
    • Our Aims
    • Members
    • Board of Directors
    • Auditors
    • Scientific Committee
    • Staff members
    • Constitutional documents and reports
  • About PH
    • Classification and WHO functional class
    • What is PAH?
    • What is CTEPH?
    • Symptoms
    • Diagnosis
    • Treatment
    • Therapies
    • ESC/ERS Guidelines
    • Research
    • PH in children
    • PH and Contraception
  • Get involved
    • Membership
    • Awareness campaigns
      • O2Kids
      • PHAE Leaders Stories
        • Gerald Fischer, PH Austria
        • Danijela Pešić, PH Serbia
        • Aksana, PH Belarus
        • Sabina, Bosnia and Herzegovina
        • Natalia, Bulgaria
        • Zdenka, Croatia
        • Eszter, PH Hungaria
        • Aryeh, PH Israel
        • Rima, PHA Lithuania
        • Roman, PH Moldova
        • Liliya, PHA Russia
        • Peter, PH Slovakia
        • Tadeja, PH Slovenia
        • Irene, ANHP Spain
        • Oksana, PHURDA Ukraine
      • World Pulmonary Hypertension Day
      • Rare Disease Day
      • Awareness month
      • Previous campaigns
        • Ironman
        • Selfie for PH
        • E-Postcard
        • Time Matters Campaign
        • RareConnect
        • Misc.
    • Advocacy/policy work
      • Call to Action on Unmet Needs of Patients with Pulmonary Hypertension – 2022
      • Breathe Vision 2030
      • Patient journey
      • Call to Action to improve Organ Donation and Transplantation across the EU – 2015
      • International Patient and Carer Survey on the the impact of PH – 2011
      • European Health Data Space
      • Partnerships
      • Useful links
      • EU legislation on public health
    • Capacity building program
    • Collaborative Educational Programs
      • Infographics
      • PH Human
      • PH: It’s personal
      • Time to Talk
        • Patient and carer resources
        • PHA Europe member resources
      • Opening lines educational project
      • Our PH Library
    • Find Your Specialist
  • News & events
    • COVID 19
      • General information
      • PH CARE patient questionnaire
      • PH reference center survey published
      • Mini COVID-19 patient survey
      • COVID-19 awareness campaign
    • Annual PH European Conferences (APHEC)
    • Mariposa Journal
    • News
    • Newsletters
    • Calendar of events
  • Clinical trials
  • Contact Us
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Mariposa Journal – 2021 winter N.27
Mariposa Journal 2022.02.10.

Mariposa Journal – 2021 winter N.27

Dear Friends, Colleagues and Supporters, It is with mixed feelings that I started writing this editorial. We had hoped that thanks to various precautionary measures we would be in the position to organize our long-awaited Annual PH European Conference again in person this fall. Unfortunately,
COVIDCTEPHELFERN-LungERSESCESOT-ETPOEU-IPFFICAMEPO2kidsWorld PH DayWPHD
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Active participation on the ELF Patient Organization Networking Day 2021
News 2021.09.21.

Active participation on the ELF Patient Organization Networking Day 2021

European Lung Foundation organized this networking event on the 2nd of September – virtually.
BSPPHCOVID-19ELFERSPHURDA
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Mariposa Journal – 2021 summer N.26
Mariposa Journal, News 2021.08.11.

Mariposa Journal – 2021 summer N.26

Dear Friends, I am happy to share with you the Summer 2021 edition of Mariposa. As you might know this edition is solely dedicated to World PH Day events all over the world and provides a nice overview of what has been achieved on a
Breathe Vision for 2030COVIDELFERN-LungEURORDISMEPPHA EuropeWorld PH DayWPHDWPHD 2021
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Mariposa Journal – 2020 winter N.25
Mariposa Journal, News 2021.01.26.

Mariposa Journal – 2020 winter N.25

Dear Friends, I am delighted to present the Winter 2020 edition of Mariposa. No one would have thought at the beginning of the year how special and challenging the coming days would be. On the 10th of March, the World Health Organization declared the COVID-19
2020COVIDELFEPFEURORDISMariposaPHCareWPHD
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PHA Europe 2015 October
Newsletter 2015.10.29.

PHA Europe 2015 October

Big success for our Annual PH European Conference (APHEC) Seventy-two pulmonary hypertension patient leaders from 31 countries took part in the 2015 edition of the APHEC. The program started with our Annual General Assembly, with the elections for the new Boardand Auditors and the vote
ActelionAPHECEFAEHNEKHAELFEODDEPFEPHAERSEURORDISFED-ERGODTPACT
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