In 1998, after three years of travelling from one doctor to the next, we finally got the diagnosis ‘primary pulmonary hypertension‘ for our then three-year-old

Beatriz is 46 years old and, according her mother, “she was born without health”. Her mother is her caregiver. She used to take care of

I think of PH all the time. I think about some banal things that other people don’t think about. For example, how far can I

When I was diagnosed with PH, I often thought about the disease. I kept searching the Internet, I listened to various stories about it, asked

My name is Tami and I am married to Gilad. During the month of February 2016, Gilad was not feeling well and complaining of shortness

Nobody knows what might happen from one day to another. But I feel like I had a gun to my head. The gun’s name was

The first symptoms for the illness appeared after the first year and a half of my marriage. We were a young couple living in a

Well, the disease is called pulmonary hypertension, at least that is what the doctor at the Vienna General Hospital told me. I had realized that

I realized something was wrong with my health because I couldn’t talk at the same time as I was walking. I had extreme difficulty breathing.

Two years ago, on a completely regular day at work, I started to feel dizzy followed by tingles in my legs and right palm.

What comes to mind when you hear «Time for people to realise that you are ill»?, The first thing I think of, is that people

What comes to mind when you hear “Time for people to realize that you are ill”? Diseases are always diseases. For me this disease was

My name is Dusanka Radojcic. I’ve been suffering from pulmonary hypertension for a year. Before I found out that I actually suffer from this illness,

I often think that the situation is unfair for our PH patients. First of all, our doctors are not familiar with pulmonary hypertension. PH patients

My name is Biljana Kosanovic and I was born in 1971. I’m married and I’m the mother of two children aged 14 and 9. I

I often think about how my parents must feel. How they must deal with the fact that I have serious health problems. I was not