Paula, a PH patient from Portugal, shares her experience

Paula, a PH patient from Portugal

Nobody knows what might happen from one day to another. But I feel like I had a gun to my head. The gun’s name was PH.

I was diagnosed on the eve of my 30th birthday… such a big gift!

My child was born 15 days before my diagnosis. I am aware PH is not compatible with pregnancy, so I think I am a lucky mom, after all.

Today I need more time than I needed before my diagnosis. PH makes me need more time for everything. Everything I do takes longer compared to before my diagnosis.

https://www.facebook.com/141060385915366/videos/1397053390316053/

Since I get tired easily, I need more time to, for instance, take a bath or to clean myself, to dry my hair, or even to dress my son – who is just a little child.

I need more time to eat, to talk, to walk – for everything! I take longer to do my household chores, like making a bed. I can’t make it in five minutes, because I have to stop twice or three times to take a rest. Even when I have to vacuum my house, I have to stop two or three times as well.

There was one situation in my life that I felt people didn’t respect the “extra” time I need. Once my friends agreed to go to the beach and they didn’t invite me because I would walk so slowly. They didn’t want to waste their time waiting for me, so I think the “take home message” of this TimeMatters campaign is mainly for people like that.