EURORDIS invited to a membership meeting in Stockholm and promised an event that «will provide an engaging and lively discussion on the road towards a
Dear Friends, Colleagues and Supporters, It is always a great pleasure to look back and see the ample accomplishments of the past year. From the
Dear Friends, I am happy to share with you the Summer 2021 edition of Mariposa. As you might know this edition is solely dedicated to
Dear Friends, I am delighted to present the Winter 2020 edition of Mariposa. No one would have thought at the beginning of the year how
PHA Europe and its members were (and are being) very busy in the PH awareness month, in November.
ECRD (European Conference for Rare Diseases) is the largest multi-stakeholder gathering in Europe for the rare disease community.
Big success for our Annual PH European Conference (APHEC). Seventy-two pulmonary hypertension patient leaders from 31 countries took part in the 2015 edition of the
International Rare Disease Day (RDD) is celebrated every year on the last day of February. This event was launched in 2008 by EURORDIS, the European
1.ONLY TWO WEEKS TO GO TO THE FIRST WORLDPULMONARY HYPERTENSION DAY! May 5 2012 will mark a very important milestone for the PH commu-nity worldwide
1. MARIPOSA NEWS WINTER EDITION The Winter 2011 edition of PHA Euro-pe’s official journal, Mariposa News, wasissued in early January 2012. The journalcovers events taking
