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  • Home
  • About Us
    • Our History
    • Our Aims
    • Members
    • Board of Directors
    • Auditors
    • Scientific Committee
    • Staff members
    • Constitutional documents and reports
  • About PH
    • Classification and WHO functional class
    • What is PAH?
    • What is CTEPH?
    • Symptoms
    • Diagnosis
    • Treatment
    • Therapies
    • ESC/ERS Guidelines
    • Research
    • PH in children
    • PH and Contraception
  • Get involved
    • Membership
    • Awareness campaigns
      • O2Kids
      • PHAE Leaders Stories
        • Gerald Fischer, PH Austria
        • Danijela Pešić, PH Serbia
        • Aksana, PH Belarus
        • Sabina, Bosnia and Herzegovina
        • Natalia, Bulgaria
        • Zdenka, Croatia
        • Eszter, PH Hungaria
        • Aryeh, PH Israel
        • Rima, PHA Lithuania
        • Roman, PH Moldova
        • Liliya, PHA Russia
        • Peter, PH Slovakia
        • Tadeja, PH Slovenia
        • Irene, ANHP Spain
        • Oksana, PHURDA Ukraine
      • World Pulmonary Hypertension Day
      • Rare Disease Day
      • Awareness month
      • Previous campaigns
        • Ironman
        • Selfie for PH
        • E-Postcard
        • Time Matters Campaign
        • RareConnect
        • Misc.
    • Advocacy/policy work
      • Call to Action on Unmet Needs of Patients with Pulmonary Hypertension – 2022
      • Breathe Vision 2030
      • Patient journey
      • Call to Action to improve Organ Donation and Transplantation across the EU – 2015
      • International Patient and Carer Survey on the the impact of PH – 2011
      • European Health Data Space
      • Partnerships
      • Useful links
      • EU legislation on public health
    • Capacity building program
    • Collaborative Educational Programs
      • Infographics
      • PH Human
      • PH: It’s personal
      • Time to Talk
        • Patient and carer resources
        • PHA Europe member resources
      • Opening lines educational project
      • Our PH Library
    • Find Your Specialist
  • News & events
    • COVID 19
      • General information
      • PH CARE patient questionnaire
      • PH reference center survey published
      • Mini COVID-19 patient survey
      • COVID-19 awareness campaign
    • Annual PH European Conferences (APHEC)
    • Mariposa Journal
    • News
    • Newsletters
    • Calendar of events
  • Clinical trials
  • Contact Us
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EURORDIS

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Mariposa Journal – 2021 summer N.26
Mariposa Journal, News 2021.08.11.

Mariposa Journal – 2021 summer N.26

Dear Friends, I am happy to share with you the Summer 2021 edition of Mariposa. As you might know this edition is solely dedicated to World PH Day events all over the world and provides a nice overview of what has been achieved on a
Breathe Vision for 2030COVIDELFERN-LungEURORDISMEPPHA EuropeWorld PH DayWPHDWPHD 2021
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Mariposa Journal – 2020 winter N.25
Mariposa Journal, News 2021.01.26.

Mariposa Journal – 2020 winter N.25

Dear Friends, I am delighted to present the Winter 2020 edition of Mariposa. No one would have thought at the beginning of the year how special and challenging the coming days would be. On the 10th of March, the World Health Organization declared the COVID-19
2020COVIDELFEPFEURORDISMariposaPHCareWPHD
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PH awareness month 2020
Awareness month 2020.11.24.

PH awareness month 2020

PHA Europe and its members were (and are being) very busy in the PH awareness month, in November.
APHECCOVID-19EURORDISPHA EuropeRTL TVSlovenian PH
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ECRD goes online
News 2020.04.16.

ECRD goes online

ECRD (European Conference for Rare Diseases) is the largest multi-stakeholder gathering in Europe for the rare disease community.
ECRDEURORDIS
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PHA Europe 2015 October
Newsletter 2015.10.29.

PHA Europe 2015 October

Big success for our Annual PH European Conference (APHEC) Seventy-two pulmonary hypertension patient leaders from 31 countries took part in the 2015 edition of the APHEC. The program started with our Annual General Assembly, with the elections for the new Boardand Auditors and the vote
ActelionAPHECEFAEHNEKHAELFEODDEPFEPHAERSEURORDISFED-ERGODTPACT
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International Rare Disease Day 2015 Policy event and “Black Pearl” Gala Dinner
News 2015.03.30.

International Rare Disease Day 2015 Policy event and “Black Pearl” Gala Dinner

International Rare Disease Day (RDD) is celebrated every year on the last day of February. This event was launched in 2008 by EURORDIS, the European Rare Disease Organization and has since gained increasing consensus, with thousands of RDD events organized in collaboration with patient associations
EURORDISRare Disease DayRDD
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PHA Europe 2012 March
Newsletter 2012.03.28.

PHA Europe 2012 March

1.ONLY TWO WEEKS TO GO TO THE FIRST WORLDPULMONARY HYPERTENSION DAY! May 5 2012 will mark a very important milestone for the PH commu-nity worldwide with the first international PH day being organized bythe Spanish PH association ANHP. The event has received the endor-sement of
EURORDISNORDPHA Europe
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PHA Europe 2012 February
Newsletter 2012.02.26.

PHA Europe 2012 February

1. MARIPOSA NEWS WINTER EDITION The Winter 2011 edition of PHA Euro-pe’s official journal, Mariposa News, wasissued in early January 2012. The journalcovers events taking place in the secondhalf of 2011, including reports of PHA Europe initiatives (General Annual Assembly, Time matters campaign, etc.) as
ERSESCEURORDISNORDORPHANETPHPHA Europe
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