We keep you up-to-date about the happenings on the field of PH and rare diseases and provide you with healthcare-related news in the European Union and beyond.
Presidential greeting
Dear friends, My name is Danijela Pešić and I am the current president of PHA Europe. As many of you know, the organization has existed since 2003 and gathers around itself almost all European countries. Our goal is to help all patients, their caregivers, and together with the profession and decision-makers, to enable a […]
ECRD goes online
ECRD (European Conference for Rare Diseases) is the largest multi-stakeholder gathering in Europe for the rare disease community.
EPF holds its annual general meeting via videoconference
European Patient Forum will hold its annual general meeting via videoconference on 24th of April due to COVID.
European IPF Patient Summit is cancelled
PHA Europe was invited as guest speaker but the event originally scheduled for 24-26th of April in Warsaw was cancelled due to COVID. Learn more at: https://euipfsummit.org/
ERN-Lung Board meeting
PHA Europe attended the ERN-Lung Board meeting on 26-27th of February in Frankfurt. We represent the patient perspective in this very high profile network consisting of key-opinion leaders of the rare respiratory field. Learn more at: https://ern-lung.eu/
Medical Devices
Inhalation Devices BreelibTM is a nebulizer, developed for the inhalation of a liquid medication indicated for the treatment of patients with pulmonary arterial hypertension.
Sir John VANE Annual Symposium on Prostacyclin Science and Pulmonary Vascular Disease
The Tenth John Vane Memorial Symposium on Prostacyclin Science and Pulmonary Vascular Disease was held in London on March 6 and 7. This annual event is held in memory of Sir John Vane, who shared the Nobel Prize in medicine with Salvator Moncada in 1982 for his work on prostaglandins. Together with colleagues at Wellcome […]
International Rare Disease Day 2015 Policy event and “Black Pearl” Gala Dinner
International Rare Disease Day (RDD) is celebrated every year on the last day of February. This event was launched in 2008 by EURORDIS, the European Rare Disease Organization and has since gained increasing consensus, with thousands of RDD events organized in collaboration with patient associations worldwide every year.
Scientific conferences 2014
In the course of 2014 PHA Europe representatives were present at the two largest events in the fields of cardiology and respiratory medicine. The 2014 annual congress of the European Society of Cardiology was held in Barcelona (Spain) from August 30 to September 3 and was attended by 30,000 participants from all over the world. […]