We keep you up-to-date about the happenings on the field of PH and rare diseases and provide you with healthcare-related news in the European Union and beyond.
PH CARE COVID survey has been published in the OJRD!
We received a great present for our #WorldPHDay celebration from the Orphanet Journal of Rare Disease (OJRD): the long awaited article on PH CARE COVID survey has been published in the first days of May!
Joining forces to mark World PH Day, May 5
FOR IMMEDIATE RELEASE [Vienna] (5th of May, 2021) – World Pulmonary Hypertension Day is an annual global event to raise awareness of pulmonary hypertension (PH), a severe condition affecting the lungs and heart.
APHEC 2020
PHA Europe has run an annual conference for many years in a row. We usually meet in a hotel by the beach just south of Barcelona. We call it APHEC (Annual PH European Conference). The participants are leaders of the European national associations. They are invited to bring an extra person – often a translator, […]
ERS Vision Live: Living with rare respiratory diseases through the COVID-19 pandemic
The European Respiratory Society (ERS) works with leaders in respiratory education to assess training and development needs and identify appropriate teaching and learning methods. As a result of this work “ERS Vision Live” series have been launched with the aim of covering the latest advances in respiratory medicine and support health professionals to continually improve […]
Invitation to PHA Europe’s virtual annual conference (APHEC)
The conference hall will be available from February 28th. Here you will be able to see presentations by leading PH specialist talking about the future of PAH medication, PH and Covid-19, transplant issues, etc. In addition, you will see presentations about subjects like yoga, breathing techniques, mental issues and rehab.
Mariposa Journal – 2020 winter N.25
Dear Friends, I am delighted to present the Winter 2020 edition of Mariposa. No one would have thought at the beginning of the year how special and challenging the coming days would be. On the 10th of March, the World Health Organization declared the COVID-19 outbreak a pandemic.
ERS Statement on CTEPH is published!
The ERS Statement on Chronic Thromboembolic Pulmonary Hypertension (CTEPH) has now been published online in the European Respiratory Journal (ERJ) as an early view.
COVID-19 PH reference center survey published
Two COVID questionnaires were launched earlier this year. One of the surveys was disseminated within the expert centres and provided useful insight of the effects of COVID-19 on PH patients.
Virtual ERS Congress – free COVID-19 live programme
The first ever virtual ERS International Congress will take place on 7–9 September and a day’s worth of free online sessions dedicated to SARS-CoV-2 and COVID-19 will be organized in addition to the Congress programme.