We keep you up-to-date about the happenings on the field of PH and rare diseases and provide you with healthcare-related news in the European Union and beyond.
Report from the EPF Congress 2025
The EPF Congress 2025 brought together patient leaders, policymakers, clinicians and industry to assess Europe’s readiness for future health crises and to explore how healthcare systems can become more resilient, equitable and patient-centred.
European Respiratory Patient Academy
The European Respiratory Patient Academy took place in Prague on 13–16 November 2025 and gathered patient advocates from many countries for four days of training, networking, and skills-building.
Breathing Better: Scaling up EU Prevention Policies for Respiratory Health
Breathing Better: Scaling up EU Prevention Policies for Respiratory Health Report from the EU Parliament event, September 23, 2025
Report from the world PH Symposium Updates 2025
This event was organized as an interim update to the World Symposium on Pulmonary Hypertension (WSPH), which has traditionally been held every five years.
PVRI Symposium Report 2025
I recently attended the PVRI Drug Discovery & Development Symposium 2025 in Amsterdam, held 16–17 June and regarded as the smaller of PVRI’s two Hlagship meetings.
ERS Prevention Summit 2025
The ERS Presidential Summit on Prevention, held in Dublin in June 2025, gathered leading voices from medicine, science, policy, and patient advocacy to confront the growing burden of chronic respiratory diseases (CRDs).
Report on the EPF Annual General Meeting 2025
The European Patients’ Forum (EPF) is an independent, non-profit umbrella organisation representing 78 patient organisations across Europe, encompassing various disease areas and national coalitions.
Report from the 5th Baltic PH Conference, Kaunas, Lithuania
The 5th Baltic Pulmonary Hypertension (PH) Conference convened on May 9, 2025, in the historic city of Kaunas, Lithuania.
Report from the 9th ERN-LUNG Annual Board Meeting
The 9th Annual ERN-LUNG Board Meeting was held at the historic Hôpital Bicêtre in Paris. The meeting brought together representatives from all core networks, functional committees, patient organizations, and partner institutions to review current projects, share updates, and discuss future strategies.