We keep you up-to-date about the happenings on the field of PH and rare diseases and provide you with healthcare-related news in the European Union and beyond.
Lucilla Piccari, MD, PhD
The global pulmonary hypertension (PH) community has lost a deeply respected physician, researcher, and advocate with the passing of Lucilla Piccari.
Crown Princess Mette-Marit and lung fibrosis: raising awareness of serious lung disease
This week, Crown Princess Mette-Marit of Norway spoke openly to the press about her health, sharing that her lung disease has progressed and that her doctors are now preparing her for the possibility of a lung transplant.
Report from the EPF Congress 2025
The EPF Congress 2025 brought together patient leaders, policymakers, clinicians and industry to assess Europe’s readiness for future health crises and to explore how healthcare systems can become more resilient, equitable and patient-centred.
European Respiratory Patient Academy
The European Respiratory Patient Academy took place in Prague on 13–16 November 2025 and gathered patient advocates from many countries for four days of training, networking, and skills-building.
Breathing Better: Scaling up EU Prevention Policies for Respiratory Health
Breathing Better: Scaling up EU Prevention Policies for Respiratory Health Report from the EU Parliament event, September 23, 2025
Report from the world PH Symposium Updates 2025
This event was organized as an interim update to the World Symposium on Pulmonary Hypertension (WSPH), which has traditionally been held every five years.
PVRI Symposium Report 2025
I recently attended the PVRI Drug Discovery & Development Symposium 2025 in Amsterdam, held 16–17 June and regarded as the smaller of PVRI’s two Hlagship meetings.
ERS Prevention Summit 2025
The ERS Presidential Summit on Prevention, held in Dublin in June 2025, gathered leading voices from medicine, science, policy, and patient advocacy to confront the growing burden of chronic respiratory diseases (CRDs).
Report on the EPF Annual General Meeting 2025
The European Patients’ Forum (EPF) is an independent, non-profit umbrella organisation representing 78 patient organisations across Europe, encompassing various disease areas and national coalitions.