In 1998, after three years of travelling from one doctor to the next, we finally got the diagnosis ‘primary pulmonary hypertension‘ for our then three-year-old daughter. My first reaction was one of relief, at last knowing for sure what my wife had felt from the
Beatriz is 46 years old and, according her mother, “she was born without health”. Her mother is her caregiver. She used to take care of her daughter whenever the needed, and she is the pillar of her life.
When I was diagnosed with PH, I often thought about the disease. I kept searching the Internet, I listened to various stories about it, asked for anything related to PH. I must admit, all the information effected me a lot.
My name is Tami and I am married to Gilad. During the month of February 2016, Gilad was not feeling well and complaining of shortness of breath. We were referred for an ECG and an Echo examination. In the Echo the doctors were able to
The first symptoms for the illness appeared after the first year and a half of my marriage. We were a young couple living in a tiny apartment and all of a sudden I realized that as I walked from my bedroom to the kitchen I
Well, the disease is called pulmonary hypertension, at least that is what the doctor at the Vienna General Hospital told me. I had realized that something was wrong with me for some time. First it was just little things like: “I have to take it
What comes to mind when you hear «Time for people to realise that you are ill»? The first thing I think of, is that people don’t know what PH is. Furthermore, many symptoms are different from patient to patient. So our disease becomes anonymous…
What comes to mind when you hear “Time for people to realize that you are ill”? Diseases are always diseases. For me this disease was more difficult because it was unknown and it remains unknown for most people. For me it was like a punch
My name is Dusanka Radojcic. I’ve been suffering from pulmonary hypertension for a year. Before I found out that I actually suffer from this illness, I thought I was suffering from the ordinary hypertension.
I often think that the situation is unfair for our PH patients. First of all, our doctors are not familiar with pulmonary hypertension. PH patients should be treated vigorously like any other disease, but the doctors don’t want to fight hard enough for PH patients.
My name is Biljana Kosanovic and I was born in 1971. I’m married and I’m the mother of two children aged 14 and 9. I was diagnosed with PH in April 2016. For the last 6 years, I’ve been struggling to find out the real