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  • Home
  • About Us
    • Our History
    • Our Aims
    • Members
    • Board of Directors
    • Auditors
    • Scientific Committee
    • Staff members
    • Constitutional documents and reports
  • About PH
    • Classification and WHO functional class
    • What is PAH?
    • What is CTEPH?
    • Symptoms
    • Diagnosis
    • Treatment
    • Therapies
    • ESC/ERS Guidelines
    • Research
    • PH in children
    • PH and Contraception
  • Get involved
    • Membership
    • Awareness campaigns
      • O2Kids
      • PHAE Leaders Stories
        • Gerald Fischer, PH Austria
        • Danijela Pešić, PH Serbia
        • Aksana, PH Belarus
        • Sabina, Bosnia and Herzegovina
        • Natalia, Bulgaria
        • Zdenka, Croatia
        • Eszter, PH Hungaria
        • Aryeh, PH Israel
        • Rima, PHA Lithuania
        • Roman, PH Moldova
        • Liliya, PHA Russia
        • Peter, PH Slovakia
        • Tadeja, PH Slovenia
        • Irene, ANHP Spain
        • Oksana, PHURDA Ukraine
      • World Pulmonary Hypertension Day
      • Rare Disease Day
      • Awareness month
      • Previous campaigns
        • Ironman
        • Selfie for PH
        • E-Postcard
        • Time Matters Campaign
        • RareConnect
        • Misc.
    • Advocacy/policy work
      • Call to Action on Unmet Needs of Patients with Pulmonary Hypertension – 2022
      • Breathe Vision 2030
      • Patient journey
      • Call to Action to improve Organ Donation and Transplantation across the EU – 2015
      • International Patient and Carer Survey on the the impact of PH – 2011
      • European Health Data Space
      • Partnerships
      • Useful links
      • EU legislation on public health
    • Capacity building program
    • Collaborative Educational Programs
      • Infographics
      • PH Human
      • PH: It’s personal
      • Time to Talk
        • Patient and carer resources
        • PHA Europe member resources
      • Opening lines educational project
      • Our PH Library
    • Find Your Specialist
  • News & events
    • COVID 19
      • General information
      • PH CARE patient questionnaire
      • PH reference center survey published
      • Mini COVID-19 patient survey
      • COVID-19 awareness campaign
    • Annual PH European Conferences (APHEC)
    • Mariposa Journal
    • News
    • Newsletters
    • Calendar of events
  • Clinical trials
  • Contact Us
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Time Matters

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Gerry from Austria talks about his daughter
Time Matters 2017.07.26.

Gerry from Austria talks about his daughter

In 1998, after three years of travelling from one doctor to the next, we finally got the diagnosis ‘primary pulmonary hypertension‘ for our then three-year-old daughter. My first reaction was one of relief, at last knowing for sure what my wife had felt from the
Read more
The Story of Beatriz and her mother Maria
Time Matters 2017.07.03.

The Story of Beatriz and her mother Maria

Beatriz is 46 years old and, according her mother, “she was born without health”. Her mother is her caregiver. She used to take care of her daughter whenever the needed, and she is the pillar of her life.
Read more
Jelena from Serbia talks about PH
Time Matters 2017.05.31.

Jelena from Serbia talks about PH

I think of PH all the time. I think about some banal things that other people don’t think about. For example, how far can I walk during the day, when I will stop, when I should rest.
Read more
Andjela from Serbia talks about PH
Time Matters 2017.05.31.

Andjela from Serbia talks about PH

When I was diagnosed with PH, I often thought about the disease. I kept searching the Internet, I listened to various stories about it, asked for anything related to PH. I must admit, all the information effected me a lot.
Read more
The Story of Gilad Lauterbach and Pulmonary Hypertension
Time Matters 2017.03.17.

The Story of Gilad Lauterbach and Pulmonary Hypertension

My name is Tami and I am married to Gilad. During the month of February 2016, Gilad was not feeling well and complaining of shortness of breath. We were referred for an ECG and an Echo examination. In the Echo the doctors were able to
Read more
Paula, a PH patient from Portugal, shares her experience
Time Matters 2017.03.10.

Paula, a PH patient from Portugal, shares her experience

Nobody knows what might happen from one day to another. But I feel like I had a gun to my head. The gun’s name was PH.
Read more
Yifat from Israel talks about her PH experience
Time Matters 2017.02.20.

Yifat from Israel talks about her PH experience

The first symptoms for the illness appeared after the first year and a half of my marriage. We were a young couple living in a tiny apartment and all of a sudden I realized that as I walked from my bedroom to the kitchen I
Read more
Eva (Austria) talks about her PH experience
Time Matters 2017.02.16.

Eva (Austria) talks about her PH experience

Well, the disease is called pulmonary hypertension, at least that is what the doctor at the Vienna General Hospital told me. I had realized that something was wrong with me for some time. First it was just little things like: “I have to take it
Read more
Franziska (Austria) talks about her PH experience
Time Matters 2017.02.16.

Franziska (Austria) talks about her PH experience

I realized something was wrong with my health because I couldn’t talk at the same time as I was walking. I had extreme difficulty breathing.
Read more
Revital (Israel) talks about her PH experience
Time Matters 2017.02.13.

Revital (Israel) talks about her PH experience

Two years ago, on a completely regular day at work, I started to feel dizzy followed by tingles in my legs and right palm.
Read more
Maria (Portugal) talks about her PH experience
Time Matters 2017.02.08.

Maria (Portugal) talks about her PH experience

What comes to mind when you hear «Time for people to realise that you are ill»? The first thing I think of, is that people don’t know what PH is. Furthermore, many symptoms are different from patient to patient. So our disease becomes anonymous…
Read more
Agostinho (Portugal) talks about his PH experience
Time Matters 2017.02.05.

Agostinho (Portugal) talks about his PH experience

What comes to mind when you hear “Time for people to realize that you are ill”? Diseases are always diseases. For me this disease was more difficult because it was unknown and it remains unknown for most people. For me it was like a punch
Read more
Dusanka (Serbia) talks about her PH experience
Time Matters 2017.01.31.

Dusanka (Serbia) talks about her PH experience

My name is Dusanka Radojcic. I’ve been suffering from pulmonary hypertension for a year. Before I found out that I actually suffer from this illness, I thought I was suffering from the ordinary hypertension.
Read more
Ivana (Serbia) talks about her PH sick mother
Time Matters 2017.01.26.

Ivana (Serbia) talks about her PH sick mother

I often think that the situation is unfair for our PH patients. First of all, our doctors are not familiar with pulmonary hypertension. PH patients should be treated vigorously like any other disease, but the doctors don’t want to fight hard enough for PH patients.
Read more
Biljana (Serbia) talks about her PAH experience
Time Matters 2017.01.25.

Biljana (Serbia) talks about her PAH experience

My name is Biljana Kosanovic and I was born in 1971. I’m married and I’m the mother of two children aged 14 and 9. I was diagnosed with PH in April 2016. For the last 6 years, I’ve been struggling to find out the real
Read more
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