Gerry from Austria talks about his daughter
In 1998, after three years of travelling from one doctor to the next, we finally got the diagnosis ‘primary pulmonary hypertension‘ for our then three-year-old daughter. My first reaction was one of relief, at last knowing for sure what my wife had felt from theThe Story of Beatriz and her mother Maria
Beatriz is 46 years old and, according her mother, “she was born without health”. Her mother is her caregiver. She used to take care of her daughter whenever the needed, and she is the pillar of her life.Jelena from Serbia talks about PH
I think of PH all the time. I think about some banal things that other people don’t think about. For example, how far can I walk during the day, when I will stop, when I should rest.Andjela from Serbia talks about PH
When I was diagnosed with PH, I often thought about the disease. I kept searching the Internet, I listened to various stories about it, asked for anything related to PH. I must admit, all the information effected me a lot.The Story of Gilad Lauterbach and Pulmonary Hypertension
My name is Tami and I am married to Gilad. During the month of February 2016, Gilad was not feeling well and complaining of shortness of breath. We were referred for an ECG and an Echo examination. In the Echo the doctors were able toPaula, a PH patient from Portugal, shares her experience
Nobody knows what might happen from one day to another. But I feel like I had a gun to my head. The gun’s name was PH.Yifat from Israel talks about her PH experience
The first symptoms for the illness appeared after the first year and a half of my marriage. We were a young couple living in a tiny apartment and all of a sudden I realized that as I walked from my bedroom to the kitchen IEva (Austria) talks about her PH experience
Well, the disease is called pulmonary hypertension, at least that is what the doctor at the Vienna General Hospital told me. I had realized that something was wrong with me for some time. First it was just little things like: “I have to take itFranziska (Austria) talks about her PH experience
I realized something was wrong with my health because I couldn’t talk at the same time as I was walking. I had extreme difficulty breathing.Revital (Israel) talks about her PH experience
Two years ago, on a completely regular day at work, I started to feel dizzy followed by tingles in my legs and right palm.Maria (Portugal) talks about her PH experience
What comes to mind when you hear «Time for people to realise that you are ill»? The first thing I think of, is that people don’t know what PH is. Furthermore, many symptoms are different from patient to patient. So our disease becomes anonymous…Agostinho (Portugal) talks about his PH experience
What comes to mind when you hear “Time for people to realize that you are ill”? Diseases are always diseases. For me this disease was more difficult because it was unknown and it remains unknown for most people. For me it was like a punchDusanka (Serbia) talks about her PH experience
My name is Dusanka Radojcic. I’ve been suffering from pulmonary hypertension for a year. Before I found out that I actually suffer from this illness, I thought I was suffering from the ordinary hypertension.Ivana (Serbia) talks about her PH sick mother
I often think that the situation is unfair for our PH patients. First of all, our doctors are not familiar with pulmonary hypertension. PH patients should be treated vigorously like any other disease, but the doctors don’t want to fight hard enough for PH patients.