Business plan

Resources - How to start a patient association: Business plan

To ensure direction and sustainability, a simple business plan should be created. This outlines the goals of the association, planned activities, funding needs, and how resources will be used over time.

When starting a new patient association, it’s important to have a clear idea of what you want to achieve and how you plan to do it. A simple business plan can serve as a useful guide in the early stages and help the association stay focused and organised as it grows.

The business plan should outline the main goals of the association—what it hopes to offer its members and how it intends to create value for the PH community. It should also include a plan for activities (such as meetings, awareness campaigns, or information materials), a basic timeline, and an estimate of the financial resources needed.

Funding is often a challenge for new associations, so the business plan can also include ideas for how to secure income—through grants, donations, membership fees, or partnerships with sponsors. Even if the association starts with very limited funds, having a plan shows potential partners that the group is serious, structured, and forward-looking.
Finally, a business plan is a useful tool when applying for funding or explaining the purpose of the association to external stakeholders, such as health authorities, other NGOs, or the media. It does not have to be long or complicated, but it should reflect the vision, priorities, and practical needs of the new association.

A well-prepared business plan helps turn good intentions into concrete steps—and increases the chance that the association will grow, survive, and make a lasting difference.

Registration

It is important that a new association is correctly registered as a non-profit organization in your country. Some countries have decided to be part of a bigger association (e.g. heart and lung associations) while most become an association on their own.

Statutes

Statutes need to be written in order to register an association. PHA Europe has written some statutes that can be used as a template. However, remember to double check the requirements of statutes in your given country before adjusting the template.

Scientific Committee

In order to have medical credibility, it is important that a scientific committee is establish together the new association. One PH doctor might be sufficient and help review information published online, brochures, etc.

Website/Facebook/Forum

Most patients are active on Internet. A new association needs to have an online presence, and PHA Europe can help. They can set up both a web page, Facebook page and an online forum for the new association. This is a simple procedure that requires that a template is filled in with country specific information.

Brochure

It is important to have a brochure describing the association. This can be distributed by, among others, PH nurses to newly diagnosed patients in order to inform them of the existence of the association.

First patient meeting

PH is a rare disease and patients seldom meet other patients. It is therefore especially important that a patient meeting is organized. This should be done as soon as possible after the new association is established.
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