On this page you will find various materials to help you understand more about your diagnosis, and how you can work with your healthcare team to achieve your personal goals. You may also find the materials here useful if you are caring for a loved one who is suffering from PH.
These materials have been developed in collaboration with Bayer AG.
Pulmonary arterial hypertension (PAH)
PAH is a type of PH caused by changes in the pulmonary arteries.1 If you have PAH, the walls of your pulmonary arteries are thicker and stiffer than normal. This causes high blood pressure in the pulmonary arteries,1,2 and leads to breathlessness, tiredness and weakness.3
Watch this short video about Patricia, a patient who suffers from PAH. Patricia is making her personal goals possible with the support of her healthcare providers and her local patient association.
Living with PAH: Supporting you to manage and achieve your goals: This brochure contains practical information about PAH, including treatment options and general tips on managing the condition. It is also useful to family, caregivers or friends of people who live with PAH.
Chronic thromboembolic pulmonary hypertension (CTEPH)
CTEPH is a type of PH caused by a blood clot sticking to the wall of a pulmonary artery in the lungs. The clot changes over time to become more solid and fibrous.4 This restricts blood flow, causing high blood pressures in the lungs4 and feelings of breathlessness, tiredness and weakness.5
Watch this short video about Robert, a patient who suffers from CTEPH. Robert is making his personal goals possible with the support of his healthcare providers and his local patient association.
Living with CTEPH: Supporting you to manage and achieve your goals:This brochure contains practical information about CTEPH, including treatment options and general tips on managing the condition. It is also useful to family, caregivers or friends of people who live with CTEPH.
Life to Live
“PAH is what I have, not who I am”.
You have a right to maintain your quality of life and stay connected with the people and things you value most. Your PAH should not get in the way of that.
The right therapy can go beyond just managing your PAH, to enable you to maintain your relationships, your professional life, your interests…your identity.
Watch the clips below to learn more:
- Wilkins MR et al. Eur Respir Rev 2012;21:19–26.
- Rosenblum WD et al. Cardiol Rev 2010;18:58–63.
- Barst RJ et al. J Am Coll Cardiol 2004;43(Suppl 1):S40–S47.
- Lang I et al. Eur Respir Rev 2015;24:246–52.
- Galiè N et al. Eur Heart J 2016;37:67–119.