PHA Europe has recently launched a cross condition "Call to Action to improve organ donation and transplantation across Europe".
PHA Europe's Policy brief and Call to action identify the main unmet needs of persons living with pulmonary hypertension and recommends effective ways to address those needs. The Call to action has been endorsed by the European Respiratory Society and was officially presented in the European Parliament in 2012.
The International PAH Patient and Carer Survey (IPCS) was conducted to provide new insights into the wider impact of pulmonary arterial hypertension (PAH) on patients and carers, beyond the clinical definition of the physical burden of the disease.
One of PHA Europe's missions is to ensure that EU-level policies and initiatives take better account of pulmonary hypertension and rare diseases as well as those affected by them.
This section includes links to EU legislation and other reference papers on public health which are most relevant to our association, namely rare diseases, cross-border health, organ donation and transplant.