Mariposa Journal – 2018 Winter N.21
I am delighted to present the Winter 2018 edition of Mariposa. This year was extremely busy and it is a great pleasure to look back on these achievements and projects. We can all be very proud of them! The year actually started in the winter of 2017, when we received an amazing e-mail from EURORDIS, Rare Diseases Europe, announcing that PHA Europe had been voted as the “Best Patient Organization of the year 2018”! This prestigious award is a huge honor for us and testifies to the appreciation of the hard work and dedication of all of our member associations, volunteers, Board and staff members. You can gain some insights into the EURORDIS Gala Dinner and Awards Ceremony held on 20th of February in Brussels, and even read the complete thank you speech, in this edition of our journal.