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 Our General Annual Meeting 2011 had an exceptional turnout with 46 PH  patient leaders and representatives from 22 countries attending:

 Austria, Belgium, Bulgaria, Czech Republic, Finland, France, Germany,  Hungary, Italy, Israel, Latvia, Netherlands, Norway, Poland, Romania,  Russia, Slovakia, Slovenia, Spain, Sweden, Switzerland and Turkey.  The  meeting had  a very wide ranging agenda with discussions on PH related  items and presentations from prestigious speakers from the medical and  nursing professions, industry and other PH associations worldwide.

 Report and photos will follow in the next Mariposa News.

 2. New PH awareness campaign 2011

 Time matters! Yes, it really does for PH patients... Early diagnosis  and early treatment can make the world of difference in terms of  improved prognosis and quality of life. So "time" is the theme we have  chosen for our next awareness campaign, launched recently. PH patients  and caregivers across Europe (and hopefully the rest of the world) will  be able to post their photos and thoughts about how and why TIME MATTERS  for them. All the stories collected will form the basis of a new  awareness initiative details of which will follow shortly.

 See www.phtimematters.com

 3. Summer edition of MARIPOSA NEWS

 The Summer edition of PHA EUROPE's official journal is out and can be  downloaded from the website.

 4. European Society of Cardiology (ESC) and European Society of  Respiratory Medicine (ERS) 2011 Annual Congresses

 PHA EUROPE was present with a booth at the ESC and ERS 2011 Annual  Congresses. During the ERS PHA EUROPE convened an Expert Roundtable  meeting of PH experts, including key medical opinion leaders,  representatives of PH associations from Europe, South America and the  USA, of the European Rare Diseases Organization, EURORDIS, and from the  main pharmaceutical companies involved in PH. The aim is to establish a  framework for a common position paper addressing the main challenges  still facing PH patients: lack of awareness, delays in diagnosis,  differences in access to treatment and surgery across Europe, lack of  specialized medical centres, problems related to organ donation and  transplant. Follow up is planned over the next few months. More details  will follow in our next Mariposa News.