Mariposa Journal – 2023 Winter N.31

Mariposa Journal – 2023 Winter N.31
PHAE - Mariposa Journal (2023 Winter N.31) editors memo

REFLECTING ON 2023 AND WELCOMING NEW MEMBERS

Dear Friends, Colleagues and Supporters,

As we turn the page on another remarkable year, it’s with immense pride and gratitude that I reflect on the journey that was 2023. This year has been a testament to the unwavering dedication, resilience, and collaborative spirit that define our organization and community.

Advocacy and Engagement

Advocacy remains at the core of our mission, and 2023 saw us lead the way in several pivotal initiatives. At the forefront was our leadership in World PH Day, a project that we proudly championed. Our efforts in this global campaign have helped raise awareness about pulmonary hypertension on an unprecedented scale, bringing together communities and organizations from around the world.

In addition, our proactive engagement in national advocacy activities, together with the relentless effort of our member associations, continued to bear fruit. Our members all received our Call to Action document including an executive summary in their native language. This document serves as a compass, guiding our advocacy efforts and emphasizing the importance of patients in policy making, drug regulatory processes, and clinical guideline development.

The month of November marked another significant milestone as we collaborated with PHA on the November Awareness Month, further amplifying our impact and reach.

Workshops and Conferences

Our commitment to education and awareness took center stage at major congresses throughout the year. The European Respiratory Society (ERS), the European Society of Cardiology (ESC), and the European Society for Organ Transplantation (ESOT) provided vital platforms for us to engage with the global healthcare community. At these events, we not only showcased our expertise in pulmonary hypertension but also forged meaningful collaborations and shared our vision for the future of PH care.

Beyond these major conferences, we actively participated in various other workshops, symposia, and events, expanding our network and deepening our knowledge base.

Information and Education

In our quest to provide reliable information, our Mariposa journal continued to be a beacon of knowledge, with special editions dedicated to World PH Day projects and comprehensive coverage of our activities. Meanwhile, our online presence, including our website and social media platforms, allowed us to reach a broader audience and provide updates on conferences,
learning opportunities, and new publications.

New Members and the Bel Air Center

In 2023, we celebrated five new members, a testament to our growing influence that now extends beyond Europe. We welcomed Germany and in addition to our long time associated member Israel, our global reach now includes new associated members from Argentina, China, Japan and the US, underscoring the International scope of our mission.

As we look forward to 2024, we are excited to introduce the Bel Air Center, a dynamic platform for learning, collaboration, innovation, and social interaction that will further elevate our efforts to improve the lives of PH patients worldwide.

In closing, I would like to extend my heartfelt thanks to our members, partners, and supporters who have made the progress of 2023 possible. Together, we will continue to advocate, educate, and innovate, ensuring a brighter and healthier future for pulmonary hypertension patients across the globe.

The journal is available from here: PHAE – Mariposa Journal (2023 Winter N.31)

With deep appreciation and optimism,
Eva Otter
President PHA Europe

CONTENTS

In 2023 PHA Europe was present at… p. 5
Annual PH European Conference 2023 p. 16
Reports On Congresses & Conferences p. 20
PHA Europe – Social Media Activities p. 23
Member Support Program (MSP) p. 26
ARGENTINA p. 27
AUSTRIA p. 30
BELARUS p. 33
BELGIUM p. 34
BOSNIA AND HERZEGOVINA p. 38
BULGARIA BSPPH p. 41
BULGARIA PHA p. 45
CHINA p. 48
CROATIA p. 51
CZECH REPUBLIC p. 54
HUNGARY p. 57
ISRAEL p. 62
ITALY AMIP p. 63
LATVIA p. 65
THE NETHERLANDS p. 70
NORTH MACEDONIA p. 72
NORWAY p. 73
PORTUGAL p. 74
SERBIA p. 79

SLOVAKIA p. 83
SLOVENIA p. 86
SPAIN ANHP p. 89
SPAIN FCHP p. 93
SPAIN HPE p. 99
UKRAINE PHA p. 103
UKRAINE PHURDA p. 105
SWEDEN p. 109
Upcoming PH events p. 110
Media clippings p. 112
Austria p. 112
Belgium p. 114
Bulgaria BSPPH p. 116
Croatia p. 116
Czech Republic p. 117
Hungary p. 118
North Macedonia p. 118
Slovenia p. 119
Spain HPE p. 119
Ukraine PHA p. 121
Sponsors p. 123
Aims of PHA p. 124
Members of PHA Europe and contact details p. 125
Associated members of PHA Europe and contact details p. 127

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