Mariposa Journal – 2025 Winter N.35
March 10, 2026
2025 has brought us many remarkable moments, and it is a pleasure to reflect on a year marked by strong advocacy, meaningful collaboration, and a
2025 has brought us many remarkable moments, and it is a pleasure to reflect on a year marked by strong advocacy, meaningful collaboration, and a
On 24 February 2026, the European Lung Health Group (ELHG) convened its second High-Level Forum on Lung Health in Brussels.
HAEUROPE’s annual PH European Conference (APHEC) once again brought our community together in Castelldefels, just outside Barcelona, for several days of learning, discussion, collaboration, and
The global pulmonary hypertension (PH) community has lost a deeply respected physician, researcher, and advocate with the passing of Lucilla Piccari.
This week, Crown Princess Mette-Marit of Norway spoke openly to the press about her health, sharing that her lung disease has progressed and that her
The EPF Congress 2025 brought together patient leaders, policymakers, clinicians and industry to assess Europe’s readiness for future health crises and to explore how healthcare
The European Respiratory Patient Academy took place in Prague on 13–16 November 2025 and gathered patient advocates from many countries for four days of training,
My name is Hall Skaara, and I am here to share my story as a respiratory patient.
Welcome to the Summer 2025 edition of Mariposa! This issue is fully dedicated to celebrating World PH Day 2025, a day when our community comes
Breathing Better: Scaling up EU Prevention Policies for Respiratory Health Report from the EU Parliament event, September 23, 2025
This event was organized as an interim update to the World Symposium on Pulmonary Hypertension (WSPH), which has traditionally been held every five years.
I recently attended the PVRI Drug Discovery & Development Symposium 2025 in Amsterdam, held 16–17 June and regarded as the smaller of PVRI’s two Hlagship
The ERS Presidential Summit on Prevention, held in Dublin in June 2025, gathered leading voices from medicine, science, policy, and patient advocacy to confront the
The European Patients’ Forum (EPF) is an independent, non-profit umbrella organisation representing 78 patient organisations across Europe, encompassing various disease areas and national coalitions.
The 5th Baltic Pulmonary Hypertension (PH) Conference convened on May 9, 2025, in the historic city of Kaunas, Lithuania.
The 9th Annual ERN-LUNG Board Meeting was held at the historic Hôpital Bicêtre in Paris. The meeting brought together representatives from all core networks, functional
As we approach the conclusion of another extraordinary year, it’s a pleasure to reflect on the milestones and shared achievements that have brought us closer
On February 4th and 5th, I hade the privilege to represent PHAEUROPE in two significant events at the European Parliament – the Healthy Lungs for
In October 2023, the 7th cohort of the EUPATI Patient Expert Training Programme celebrated its graduation after a comprehensive year-long journey.
The ERS Congress 2024 in Vienna attracted close to 20,000 delegates, both onsite and online, making it a vibrant and dynamic event focused on advancing