ECRD goes online
April 16, 2020
ECRD (European Conference for Rare Diseases) is the largest multi-stakeholder gathering in Europe for the rare disease community.
ECRD (European Conference for Rare Diseases) is the largest multi-stakeholder gathering in Europe for the rare disease community.
European Patient Forum will hold its annual general meeting via videoconference on 24th of April due to COVID.
PHA Europe was invited as guest speaker but the event originally scheduled for 24-26th of April in Warsaw was cancelled due to COVID.
PHA Europe attended the ERN-Lung Board meeting on 26-27th of February in Frankfurt. We represent the patient perspective in this very high profile network consisting