In order to better understand the COVID pandemic effects on the care of PH patients and to help prepare for future challenges, a patient-centric survey has been started in the last days of May.
The survey is the result of the collaboration of all of the stakeholders: thanks to the effort of the fellow patients the English version has been translated into 19 languages so far. The survey links have been already generated for the following languages:
EN – https://www.surveymonkey.com/r/VLK3SQT
ES – https://es.surveymonkey.com/r/HW8MTFP
FR – https://fr.surveymonkey.com/r/DQRPDGC
PT – https://pt.surveymonkey.com/r/HQB3DP5
DE – https://de.surveymonkey.com/r/HW93HNL
IT – https://it.surveymonkey.com/r/HQ8ZH96
CZ – https://www.surveymonkey.com/r/HWQKW98
LV – https://www.surveymonkey.com/r/MB36HLW
LT – https://www.surveymonkey.com/r/MB6PS7X
UA – https://www.surveymonkey.com/r/MHKMR82
SK – https://www.surveymonkey.com/r/3YFJSLN
NL – https://nl.surveymonkey.com/r/5QRTTBL
SLO – https://www.surveymonkey.com/r/XR9Y69J
SRB – https://www.surveymonkey.com/r/W9T883J
BG – https://www.surveymonkey.com/r/GRNN56M
ISR – https://www.surveymonkey.com/r/NSTNNNR
Our partners in the medical field validated the questionnaires and provide the platform and the analysis capacities.
The initiative is supported by ERN-LUNG – European Reference Network for rare respiratory diseases and endorsed by European Respiratory Society, European Society of Cardiology and European Lung Foundation.
We hope more and more patients will provide feedback until 06/21/2020, when the survey ends.
Please find more information at: https://ern-lung.eu/portfolio-items/phcare-covid-survey/