The 2012 edition of PHA Europe’s “Breathtaking” awareness raising campaign was successfully launched on Rare Disease Day in Brussels on 29th February 2012.
The campaign launch event took place in central Brussels, with a number of activities taking place, including a very well known Belgian dance group performing a routine reflective of the impact of PH and “Breathtaking” postcards and materials, blue lip balms and blue lollipops being handed out to passers-by in the historical Galerie de la Reine.
A press conference was organized with key Belgian PH medical opinion leaders Prof. Marion Delcroix and Prof. Jean-Luc Vachiéry, representatives of the Belgian Flemish and French-speaking PH patient associations and PHA Europe President Gerald Fischer as speakers. The Brussels event had over 300 pieces of international media coverage with an estimated reach of 2,5 million.
Many other interesting and exciting “Breathtaking” campaign activities were organized around Rare Disease Day 2012 by PHA Europe member associations in 16 other countries: Austria, Bulgaria, Czech republic, Finland, Germany, Latvia, Hungary, Italy, Norway, Slovakia, Slovenia, Spain, Poland, Portugal, Sweden and Switzerland.
For a full report and photos of our campaign please download our Mariposa News Spring 2012 (special) edition here.