Links

PH associations in Europe

• Austria: www.lungenhochdruck.at/, Facebook
• Belarus: www.phbelarus.by
• Belgium: VZW: www.ph-vzw.be/, Facebook
HTAP: htapbelgique@hotmail.com
• Bosnia and Herzegovina: ugphbih@gmail.com
• Bulgaria: PHA: todor.mangarov@abv.bg
BSPPH: http://www.bspph.net/, Facebook
• Croatia: www.plavakrila.hr
• Czech Republic: http://www.plicni-hypertenze.cz/, Facebook
• Denmark: www.pah.dk
• Finland: pha.fin@gmail.com
• France: http://www.htapfrance.com, Facebook
• Germany: http://www.phev.de/, Facebook
• Greece: http://www.hellenicpulmonaryhypertension.gr, Facebook
• Hungary: www.tudoer.hu, Facebook
• Ireland: http://www.pulmonaryhypertension.ie/pha-ireland/
• Israel: www.phisrael.org.il, Facebook
• Italy: AMIP: http://www.assoamip.net, Facebook
AIPI: http://www.aipiitalia.it, Facebook
• Latvia: http://www.phlatvia.lv, Facebook
• Lithuania: www.plautinehipertenzija.lt
• Netherlands: http://www.pha-nl.nl/, Facebook
• Norway: http://www.pha-no.com/, Facebook
• Poland: http://www.phapolska.org/, Facebook
• Portugal: http://www.aphp-hp.org/, Facebook
• Republic of Macedonia: Facebook
• Romania: PHADER: www.phader.eu
HTAP: http://www.htap.ro/
• Russia: www.nurm.ru, Facebook
• Slovenia: www.pljucna-hipertenzija.si, mihatedi@gmail.com, Facebook
• Slovakia: www.phaslovakia.org, Facebook
• Spain: ANdHP: http://www.hipertensionpulmonar.es/, Facebook
FCHP: www.fchp.es, Facebook, Twitter
• Sweden: www.pah-sverige.se, Facebook
• Switzerland: SPHV: http://www.lungenhochdruck.ch, Facebook
HTPA: lydia_mb@bluewin.ch
• Turkey: uatli@hotmail.com
• UK: http://www.phassociation.uk.com/

• Ukraine: www.pha.org.ua, Facebook
“Sister Dalila” Charity http://poryatunok.info/

 

PH Medical centers

• UK and Ireland: http://www.pulmonaryhypertensioncentres.co.uk

 

PH Associations around the world

• USA: http://www.phassociation.org/ , http://www.phaware.global/
• Canada: http://www.phacanada.ca/
• Latin America Society: http://sociedadlatinahp.org
• Saudi Arabia: http://www.saph.med.sa/
• South Africa: www.phsa.org.za
• Japan: http://www.pha-japan.ne.jp/, http://aphj.org
• China: http://www.phachina.com/
• Australia: http://www.phaaustralia.com.au/
• New Zealand: http://www.nzpah.com/
• Singapore: http://www.phsingapore.org/

 

Rare Diseases Associations

• EURORDIS www.eurordis.org
• Orphanet: http://www.orpha.net
• NORD: http://www.rarediseases.org/

 

European Patient associations (all diseases)

• European Public Health Alliance: http://www.epha.org/
• European Patients’ Forum: http://www.eu-patient.eu/

 

Clinical trials registers

• European clinical trials register: www.clinicaltrialsregister.eu
• US register: http://clinicaltrials.gov/

 

Drug regulatory authorities

• European Medicines Agency http://www.ema.europa.eu/ema/
• US Food and Drug Administration http://www.fda.gov/

 

Scientific Societies

• European Society of Cardiology: http://www.escardio.org
• European Respiratory Society http://www.ersnet.org/
• American Thoracic Society: http://www.thoracic.org

 

Research

• Ludwig Boltzmann Institute: http://www.lbg.ac.at/en
• Pulmonary Hypertension Research group:
http://www.hypertensionarteriellepulmonaire.ca/index.php?id=787&L=2
• Association for Research in CTEPH: http://www.cteph-association.org/

Last updated: January 17, 2017